Lupie and Spoonie News and Updates

 02/21/13 My Abdominal Pain Update!

 

I have a “Lupie” update. Many of you know I have been dealing with abdominal pain for months and months. Along with the pain comes nausea etc. and I am so so tired of it. After many tests and several Doctors it has been concluded that my lap band will need to be removed. I have had it approx. 12 years and it has caused me nothing but trouble.

Now it is contraindicated to place a lap-band in someone with Lupus as well as someone with long term steroid use, tada that is me! When I got mine, the issues with these were not known. I will attest to them myself though!!!  My appointment to meet with the surgeon is on March 13th so please keep me in your prayers that this surgeon will agree to remove my band. Many will not if they did not do initial surgery, but I have moved and really do not want to travel several hours and also want to be near my Drs. that I trust. I don’t think he can blame me. Lets hope!

2/14/13

HAPPY VALENTINES DAY TO ALL SPOONIES!

HAPPY VALENTINE’S DAY TO ALL MY SPOONIE FRIENDS. I WANT TO TAKE TODAY, VALENTINE’S DAY, TO SHARE HOW SPECIAL YOU ALL ARE AND HOW GLAD I AM THAT LIFE HAS BROUGHT US TOGETHER!

IF YOU HAVE TO BE SICK, IT IS NICE TO BE ABLE TO SHARE WITH OTHERS THAT UNDERSTAND, AND HAVE KIND SUPPORTIVE WORDS TO SHARE WITH OTHERS. I HAVE BEEN BROUGHT MANY SMILES AND GOOD FEELINGS FROM MY LUPIE GUARDIAN ANGELS AND OTHER FRIENDS I HAVE MET. 

I DO NOT THINK I HAVE EVER SHARED MY STORY AND SOMEDAY I SHALL TAKE SOME TIME TO WRITE ABOUT IT. IT HAS NOW BEEN 6 YEARS THOUGH AND I SWEAR I HAVE NOT BEEN GIVEN A BREAK IN ALL THAT TIME AND CURRENTLY AM FIGHTING FOR MYSELF WHILE DEALING WITH A SICK HUSBAND AS WELL. IT IS NOT EASY AND I HAVE TO BORROW A LOT OF SPOONS DAILY. I THINK I AM MONTHS BEHIND NOW, SIGH.

I RECALL THE FIRST PERSON TO REACH OUT TO ME 6 YEARS AGO, GOSH TIME FLUTTERS BY, AND THAT IS OUR DEAREST TIFFANY. IN THE PAST YEAR OR TWO THERE HAVE BEEN A COUPLE MORE SPECIAL SPOONIES THAT HAVE TOUCHED MY HEART AND WERE GIFTS FROM GOD. I PRAY AND THANK GOD DAILY FOR ALL THEIR SUPPORT, IF ONLY A QUICK TWEET TO  REMIND ME I AM BEING THOUGHT ABOUT!

THIS VALENTINE IS FOR THOSE THAT HAVE TOUCHED MY HEART AND FOR THOSE THAT ARE TOUCHING THE HEARTS OF OTHERS. ALSO FOR ALL THE AWESOME SPOONIES AND LUPIES THAT HAVE CROSSED MY PATH AND THOSE YET TO COME. LIFE HAS MADE US ALL SPECIAL PEOPLE AND IF YOU KNOW A SPOONIE, YOU ARE A LUCKY PERSON.

WITH LOVE,

JOAN

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